The patient and family programme is aimed at providing practical information on advances in the treatment of each of the amyloidosis disorders. It will provide an opportunity to ask questions of the experts. Most exciting is the chance to hear first hand the insights and knowledge of two world leaders in amyloidosis, Professors Philip Hawkins from University College, Londonand Rodney Falk from Harvard University, Boston.

10.20 – 10.50am WELCOMING COFFEE

Session 1 10.50am – 12.20pm

Chair : Patricia Neely

10.50 -11.00 What is amyloidosis?

Peter Mollee

11.00 -11.20 What are the different types of amyloid diseases

Graeme Stewart

11.20 – 12.00 Amyloidosis of the Heart

Rodney Falk

12.00 – 1.00pm Are we close to a cure for amyloidosis?

Philip Hawkins

12.20 – 1.00pm LUNCH

Session 2 1.00pm – 3.00pm

Chair : Linda Mekhael

1.00 – 1.10 pm The importance of education and community awareness of

amyloidosis

Patricia Neely

1.10 – 1.20pm A personal perspective on fighting for a cure for all people with

amyloidosis

Trisha Gardiner

1.20 – 3.00pm Interactive session based on questions submitted by attendees

similar in format to the Westmead Forum in May 2016 with the

goal of covering all recent advances in each form of amyloid

disease including familial amyloidosis.

3.00pm WORKSHOP CLOSURE